Pulmonary Fibrosis Wales

No Life Without Lungs

 
 

Support Groups

 

 

Hywel Dda Pulmonary Fibrosis Support Group

Hywel Dda held their first pulmonary fibrosis support group on 18th April at Prince Phillip Hospital, Llanelli. It welcomed patients, family, friends and relatives affected by pulmonary fibrosis. There was an informative talk given by Dr Mark Andrews (Consultant Respiratory Physician) on “Pulmonary Fibrosis- causes, treatments and care”. Lorna McLauchlan from Action for Pulmonary Fibrosis attended and gave a short talk about the charity and how it is working to support patients and David Rees (organiser for the Swansea group) discussed his experiences of running a support group.Other members of the ILD team were also present and gave an outline of their roles and services available to patients in West Wales:

Carol-Anne Davies– Respiratory Occupational Therapists         Claire Price– Palliative Care

Tanya Howells and Jennifer Lynch Wilson– ILD Nurse Specialist 

2019  plans to continue with alternate monthly meeting alternating between Llanelli and Carmarthen and to develop into Pembrokeshire and Ceredigion

Swansea Pulmonary Fibrosis Support Group

Welcomes you to join them at their well established support group.

It aims to provide education and support to patients affected by Pulmonary Fibrosis, their family members and interested friends.

There are occasional speakers on relevant topics and occasional social meetings where patients meet and chat over a cup of tea (there is always cake!).

There is no charge to attend, however, donations are always welcome in the form of buying a raffle ticket, supplying cake or generally helping on the day.

We have recently moved into a new venue (Canolfan Gorseinon Centre) which has a lift, a café and a large car park onsite.

Group Co-Ordinator- Maggie Crawford  01792 207662   maggie.crawford@sky.com

Group Treasurer- David Rees

Support groups provide an opportunity to meet and talk to other people who understand the daily challenges of living with pulmonary fibrosis and access useful information and advice. Your specialist will be able to advise you of groups in your area.

A support group for patients under the care of Cardiff & Vale University
Health Board. The group meets bi monthly on the last Thursday of the month
1.30pm - 3pm at Llandough Hospital.

 

Tel: 02920716419 Email: Julie.hocking@wales.nhs.uk

Llandough Hospital Pulmonary Fibrosis Patient Support Group

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